whyanyone's Cancer Blog
August 28, 2010
Hey Everyone,
My gmail acocunt was hijacked so the last few weeks I have been dealing with that and setting up new accounts and passwords. What a nightmare. Google was not very helpful. It seems like the security questions they make you set up are not good for anything. They only want to know what month and year you set up your account. Like anyonw can remeber that? Plus two years post chemo I CRS! So I am now getting back into my pre-hijacking routine.
As you see I said two years post chemo. It is hard to believe as it seems like yesterday. I recall every second of it..I am waiting for it to become like childbirth where you really do not recall how bad it was….so far no luck..
I have been at my new job for three months now. It haqs gone well though I am still traveling. I drive mostly but the bathroom thing is hard. I really do not like to get off my schedule as this holds consequences that are hard to deal with. When I need to go to the bathroom I NEED to go RIGHT now dammit. SO often I will not eat when I should as I cannot be sittingwith a client in their home for two hours and have to go. Then I get into my car and get something to eat and I have to find a bathroom somewhere along the route..Thank you Starbucks and MCDonalds.
I am the equivalent of two small kids who have to go to the bathroom at any given time. Anyway, I am coping and grateful for the great job and the simple things that come with day to day life.
Fatigue is still an issue for me guys. I am now getting bioidentical hormones and I do recommend them for the improved libido..yippee skippy. I am still not feeling the love in the energy department. I am just not myself yet.
I have had every possible level tested..b-12, thyroid, folate yada yada…I have taken every supplement know to man and continue to do this. My onco said Wednesday that they no little about persistent psot chemo fatigue and are jsut beginnig to classify it in stages! I just cracked up. Can you for you just start on the why before the how much. I guess my mind does not work in a scientific manner. But at least they are now studying it. I have looked at the somewhat limited medical articles they have. They have primarily studied breast cance survivors as there are so many of them. They have found a wide varience of fatigue.
I think that sometimes people just get so used to it they forget it is there. I do not want to do this. I think if everything is normal than why would I not feel pretty normal??
Okay enough wailing about that. I have been able to escape to CA twice nor for a week each tine to get out of the heat.
Also went to Wyoming for work and visited Yellowstone..SO beautiful! I loved it so much!
The best of times are jsut hanging out at home with my golden and my kitty. They are fine..I will tell them you all asked:) Stay well my warrier friends and I continue to pray for all of us. Blessings, Lori
June 4, 2010
I made this the other nite and loved it! It’s vegetarian.
one lb of whole wheat pasta..I used Fuselli..but you can use anything really.
1 and 1/2 cups of a combination of fresh copped spinach, chervil, tarragon, thyme or any herb you like..ie; dill, rosemary. I used about two cups of just the chopped fresh spinach as one it gets steamed it becomes so small.
about 4 tbsps of olive oil
2 tbsps of lemon zez
two tbsps of lemon juice
1 tbsp of a Dash (mixed seasoning of any kind)
I tbsp of chopped garlic
Cook the pasta
put the spinach in a strainer and blanch it in the hot water from the pasta
mix the oil and lemon juice and salt and garlic with a wisk.
While the pasta is hot mix all the herbs, spinacch and your dressing together. Toss it all together to coat the pasta.
Spinkle some parmesan cheese on it..eat..
As you can see I will not become a cookbook writer! But this was a great dish. Lots of good stuff in it and no meat.
Sounds yummi. Gonna copy, paste and print this out and try it. I loooove pasta. Will let you know how it goes.
Thanks Lori.
Posted on Sounds delicious Lori! I will definately be trying it.
Nancy
Posted on Sounds fantastic- after a year of eating soup and using a feeding tube – I have become a food fanatic. Celebrated my 1 yer mark last year with 6 new cookbooks. We subscribe to an organic farm fresh veg/fruit delivery every 3 weeks. Always something new to try.
Bob
Posted on Thank you! for this suggestion on the food…...but most especially I can here to say thank you for your reply on my blog. . . I appreciate your words. and…yes,... we do go through a lot… and we live it…. not just cancer.. but so much…
And then there is creativity and anniversaries…. and the fact, like you said, that everything gets different. and yet we, our essence, remains for the full ride! ... Lori, I will be sure to continue watching your posts .. Frank
Posted on 
Thanks for your support - 
Hi Lori—
I’m so happy to hear from you! Congratulations on being 2 years post-treatment! I’m just a little behind you, as I celebrate on September 9th! Boy, do I ever hear you about the bathroom urgencies. There’s no holding it sometimes. You may have read my blog about being called for jury duty. Yep—don’t know yet how I’m going to handle that should I be selected to serve. The thought of someone controlling when I can go to the potty really frightens me, so I understand where you’re coming from. As you said, it can really mess you up inside. As for the ongoing fatigue, I have some of that too. Some days I do really well, other days I’m just whipped by mid-afternoon, even when I haven’t done much. I do not take naps because if I did, then I wouldn’t sleep at night. What to do! All my bloodwork is within normal limits too, so why the tiredness, I don’t know.
Like you, I have just learned to deal because I think some things will never be the same. I’m glad you are venturing out and enjoying your life and that your new job is working out just great for you. I’m glad to hear you pets are doing well and I’m most happy to hear that their “mom” is too! Take care and keep in touch.
Love—
Martha
Lori – Good to hear from you. Sorry that you are still experiencing fatigue. I know too well what you mean about the urgency for a bathroom when you need it. I, also suffer from IBS, so it is a double whammy. Glad you have found a job and are enjoying it. Sounds like you have taken some nice trips recently. Keep us posted. Cherie
Hi Lori – I am also so happy to hear from you! I am happy also that you found a job and it is going pretty good. As far as fatigue, well I still have it too. I am not 2 years post treatment but I am almost 15 months post. Still have the bathroom issues too, when you gotta go you gotta go now!
Glad to see you back keep in touch…..
Take care
Nancy
I have just discovered your blog…I’m just finished with treatment (a month ago) and still find that by evening I am tired no matter what I do or don’t during the day, I read and fall asleep eventually and have to go to bed, sleeping more than I ever did before but I just have to listen to my body. I don’t think the blood indicators measure everything there is to know about the body, so I just do what it wants to. None of my medical folks talked to me about this, I discovered it on the uk site of their (better) equivalent of the american cancer society. They don’t talk down to you (“your doctor has ordered this because it will help you”) and they are much more open, franker…it essentially said we don’t know why the fatigue, it might last for years, or not. I am not sure how they would go about studying this – there are so many factors in each person’s experience….am I tired because I exercise, or because I go to work everyday, or because I am not eating something important, and why do I not feel tired some days when I also go to work and spend the same amount of time exercising???
I know about the heat…we’re in El PAso, not quite as bad but this summer has been really horrible. 30 days over 100, more than twice the norm…it saps your energy.
No, cancer is not a gift. The only gift is the one you give yourself as you learn from it. I don’t think there is a deity sitting on a stool deciding “this one gets cancer so she will appreciate her life,” and “this little baby gets cancer because her family did not pray enough,” etc.
Be well and strong and here’s a hug.